Friday, December 8, 2017

Happy Friday! ❤️

Today has only gone and been a good day! I only went and bought myself a car!! Life was restricted and just a little bit too small b.c (before car) AND THEN, we had a really busy day.....between physio, and the girl calling in to introduce us to our new bit of kit (a standaid) and then a couple of more people, and well anyway, we only had time for a quick trip round the block, so our adventures will have to wait........but the weekend’s coming up, and we have my stepson for the weekend, and a Christmas tree to buy. And my youngest girl is back from uni for the weekend and we have friends coming over for pub grub and scuse me a minute, while I draw breath.

And the wrapping hasn’t started yet.........

So where to go in the car? Maybe a trip up norf to visit my sister, a trip down south to visit my brother. I really want to go and finally see daughter no1’s house, and then go and visit no.2 and see all the changes she has made to her new home.......may even go to Wales, to visit no.4, just because I can.
We haven’t had a car I can get into for MONTHS! So I plan to fill my boots with going out out visiting people and just stuff!

I see Trump is at it again....y’know.....being a Twat. Not that I’m surprised. After all, he’s just playing to his strengths. He’s playing a dangerous game, and one he can’t win without losing a lot of lives. And half/all of the world.

So maybe I should just get on, and seriously fill my boots before I get blown to pieces.

On that note...

HAPPY CHRISTMAS!
Veselé vánoce
Vrolijk kerstfeest
God jul
Рождеством
Buon Natale
メリークリスマス
FELIZ NAVIDAD.
JOYEUX NOEL. 
Frohe Weihnachten!
メリークリスマス
メリークリスマス   
メリークリスマス
Feliz Natal
BMutlu Noeller
Buono Natale
メリークリスマス

Saturday, November 25, 2017

SLEEP! Yes please.

It’s Friday and my girl is home from uni, to go to my other daughters 2nd hen party. Hen party #1 involed a lot to drink, and no old people. We, as the old, refined people are going for a cream tea, which is being gate crashed by the youthful lot as well. Because who doesn’t love a cream tea? I know what I’m wearing too. Sad as I am.

Next Saturday I’m going out to have my first ever try of Ethiopian food. I’m really looking forward to it. And I’m also looking forward to getting to spend some time with someone I don’t get to see enough of anymore. Between us, we have eight kids, so I snapped her hand off when she suggested it.
I’ll let you know what it tastes like, and if I remember to take any photos, I’ll share them too.

Every week I go to a local hospice, and despite the fact that everybody has a gloomy prognosis, people are positive. If I was in their shoes, I can’t promise I’d be the same. They also have a good number of volunteers too. And most of them have been going for years. As soon as you get there  you’re offered tea, and there’s people offering complimentary therapies, hairdressing and a counsellor  too. There’s also a lady that does art. She’s a ceramicist by trade, so we have plenty to talk about. And if you’re religious, there’s someone to talk too. I’m not religious, but I could talk to him all day. He’s interesting and interested.
So, yeah it’s got it all really.

The boys have just headed out to adventure zone, in a bid to wear them out, as they are overflowing with energy. My energy level is a tad on the low side, despite whatever amount of sleep. I’ve bought a book about getting quality sleep and it’s out for delivery today. I’m hoping it has some miracle answers. I can’t remember the last time I woke up feeling refreshed.

Sleep! I’m coming for you now/today/tonight/this weekend.




Friday, November 17, 2017

Russian Roulette.

Today I have the pleasure of the company of The Good Man. Well, that is as soon as he’s home...best get dressed then. Aw but I’ve got to wait for him to help me. Bugger. Might as well go to sleep then.....
My mind is still busy, and rushing around, juggling little people, but it’s not communicating this to my less-than-physical body. It’s a bloody ball ache.
There’s a treatment you can have, HSCT, and so far, it looks good. Really good actually. Wheelchair in, walk out. It costs a pretty penny, and I’m waiting and watching, to see how people fair over time.
As treatment goes, it’s pretty hard core, but so is living with MS. It’s an unreasonable ARSE HOLE. And is determined to rot you away. It’s had my legs. It’s working on my mind. And hands. And oh would you please just F**k OFF! MS does not follow the same course for everyone. There are about a hundred different symptoms, all with a differing severity.

So it really is like playing Russian Roulette.

I would love to learn to shoot, but not on myself. Sorry.

Yeah, so moving on......let’s talk CHRISTMAS! I only have to get for The Good Man now. And no, not a clue do I have. I took care of the younger bunch of girls and The Good Man took the boys, this lot are too young to be in secret santa. They can choose to join secret santa, or not, when they’re  21.  So Christmas shopping now is really is a breeze. And enjoyable too.

I had a clear out of my bags the other day. There was only one surviving bag, a bottle green Ted Baker one.....I love it, but it doesn’t go with everything, I got a go-with-everything bag. We are in love!❤️ The Good Man didn’t understand my logic here. In fact, I think he thought I was devoid of all logic. But no! I have a keen sense lady logic. And it serves me well.

Daughter no.2 is having her hen party, for the old lady contingent. Cream tea for us all, YUM! The Bride went out with her yoof squad a week or two ago. So now it’s our turn. And I’m really looking forward to it! A little bride present arrived in the post today! It’s really pretty, and I can’t wait to give it to her. She’s come a long way from the little girl that used to spin her pants round on her finger. Well, maybe not.

But that’s between her and the groom.


Sunday, November 5, 2017

#firstworldproblems

Trick or treating was the name of the game tonight. We don’t get many calling here, unlike when we lived in a village. I miss that. Seeing all the kids, most of whom I knew, was generally good too. I say generally........unless you caught them coming round again.......or seeing some of a questionable age.....how old are you now? Seventeen? Bugger off! So, anyway.....back to tonight......I was on door duty tonight and the Good Man was roaming the streets with The Little Man, In search of sweets and chocolate. Both big and little boys were dressed up. And I had a Frankenstein’s monster mask. Which the two little girls, aged about four, and dressed as fairies, did not appreciate. Sorry girls. Have some sweets. Sorry. Next year I’ll bag going out.

Fast forward to a week after trick or treating, to now, and I’m still lounging in bed,
lazy moo. Sort of. I have a love/hate relationship with my bed. I hate that I can’t get in or out without someone helping me. I NEVER would’ve envisioned this life when I was flinging myself around on a trampoline, or when I was riding/falling off of horses. How I am now, was probably natures way of preventing me from killing myself. I got the girls to put their mattresses on the stairs, and get in a sleeping bag, and wheeee down the stairs. I wonder if they remember that?? So yeah, who would’ve seen this life for me?
When I was told I had a rapidly evolving aggressive MS, I didn’t really understand what that meant. It wasn’t explained to me, and as I was still reeling from the diagnosis (in the same meeting ) I didn’t have the wherewithal to question it, what that REALLY meant. I get it now, but then? No. And I had a life to be getting on with.

And I did. For a while anyway. Walking. Driving. Meeting up with friends. Dating (a little bit). Still, anyway, one of my dates became the Mr to my Mrs, and we lived, reasonably happy ever after. Which is the best you can hope for, if you sometimes have views that are opposing forces.....

Being firework night the other night, meant en mass, we wrapped up and headed up the road, to what will be our boys junior school. They put on a pretty spectacular firework display. But the most impressive thing was the way the infants and junior school communicated with each other Re:me. We were met at the school gates, by a lady that lead us round to an area that was marked out for us, where we were off the main pathway, but had a good view (through a tree’s bare branches)but near the hotdog and drinks stand. And then the lady reappeared at the end of the display, to show us the short cut way out.

I hope to be returning to college to do either ceramics again, or sign language. I wish there wasn’t an ‘or’ there, but I can’t afford the moola, or the time,(well I can, but Mr, as my chauffeur cannot). So which will I choose? I miss ceramics, even the messy bits, wearing the clay on my hands, and my face and the scruffy clothing that gets chosen, as if I were decorating. But BSL is a long held dream, The little I know I loved learning and using.
Is that a problem that has earned the name #firstworldproblems?

Friday, October 27, 2017

Remembrance, hooks and having a Local.

Tonight I went out with three friends, to my local pub. And very nice it is too. In the past two months I have been there five times, and Mr Elliott and I have a date night/day to go there too. The Little Man goes back to school next week, so then I guess I’ll be hitting the pub. Make mine a coke, because that’s how I roll......hardcore all the way.  But I tell you what, I am actually quite proud of The George as my local. It is so good to have somewhere nice and welcoming (friendly staff, dogs are welcome and catered for too, water and dog biscuits just inside the door.)

Because I’m English, can I please be permitted to moan about the weather, and the clocks changing business? Right so, our clocks change at the weekend, they go back an hour. It’s already really dark. And even though this happens EVERY year, it still surprises me. Spring forward, fall back. A handy saying to help you remember what’s going on. Please excuse the Americanism. (Fall=Autumn) So, yeah, it’s dark, and dingy, and raining. On and off. On and off. Like my bobble hat and scarf. BUT I did get a proper grown up coat from Mountain Warehouse. It’s black, so it will go with my heart, ninety percent of my wardrobe, and it’s so very light and so very warm. Excellent purchase, well done.

Talking about excellent purchases, a row of hooks arrived today. And I can’t wait to get them up on the wall! It’s really important to keep the floors clear when you’re in a wheelchair, obstacles like, for example, a pile of your bags can become a death trap. A DEATH TRAP I TELL YOU!! A nod to the Good Man, who has taken on the role of health and safety executive.
Right, I must go and see about getting these hooks on the wall.


In remembrance of Chris.
Thanks for the
memories
and experiences
you provided.

Sunday, October 22, 2017

My MOT. And a list....

Well, that serves me right! Writing a blog, looking online at clothes and shit, texting a couple of people, all with one eye closed (to combat double vision) Anyway, I managed to delete what I’d written, so here I go again......

Yep, MS is stirring up shyte pour moi. It’s latest trick (and a new one on me) is that my left leg feels freezing....it’s not freezing to touch, just to me......y’know? My husband has just got back from the cinema, and he’s venting about the disaster that is Trump and what’s his name over Korea way,
Sum Dum Fuk* or something and anyway, the world goes a bit mental whenever I have a baby, or small child. Gulf Wars 1 and 2, Bosnia and Croatia, Sierra Leon, and Afghanistan, and on and on it goes. We certainly don’t need anyone else to add to that list. The World needs stabilising, but I fear Trump will knock the World off it’s axis.

I have friends visiting me from Canada at the moment. I visited them a few years ago, and it was lush. It was also where I could see the hummingbirds......beautiful little birds, who may hold the key to sorting MS. If their nervous system has a break or a blockage, their nervous system just goes around the break or blockage, and normal service is resumed. Brilliant.

I’ll tell you what’s not brilliant though......the dog’s horrific wind, and one hour spent recently at the doctors.....implant out, coil in, compliments about my cervix, whilst getting a smear, and a flu jab. Still, that’s my yearly MOT done.

The boys have disappeared this morning to sort their suits for daughter number 2’s wedding. It’s the second family wedding, and as we span from Yorkshire down to Devon, we don’t get together too much........and I miss them.

Family:
Synonyms: branch, brand, breed, cast, caste, character, classification, collection, color, degree, denomination, department, description, designation, distinction, division, domain, estate, family, feather, frame, genre, genus, grade, grain, grouping, hierarchy, humor, ilk, kidney, league, make, mold, name, nature, order, origin, property, province, quality, range, rank, rate, school, sect, section, selection, set, source, species, sphere, standing, status, stripe, style, suit, temperament, value, variety

Big thanks to Roget for the fine work. I thank you. Although, why feather? Why kidney? How did they make the list??
Linda? Help?

Saturday, September 30, 2017

See through skirt and a thong....

I have moved away from the town, where I'd lived since I three. I moved around but within the same county. Just moving one county over, gave us much more bang for our money. I really love where we live.

I had thought that one day I'd live by the sea. Or in a different country. But hey ho, wasn't meant to be. I did do a stint in Florida, but at only three months or so, it didn't really count. But y'know, I did normal everyday things there, like food shopping, clothes shopping, visit to the cinema, a stint in
A and E ( this task fell to husband number one) And more unusually Disney World and Busch Gardens. On the water rides here, I got totally soaked, and my outfit went see-through. This, unfortunately, was not lost on passers by. Nor was the fact that I was wearing a thong.
So that was nice.

Anyway, back in rainy cold England, any thongs or otherwise, are buried under jumpers and with a side order of gloves and a scarf. And a bobble hat.
It keeps raining loads, and going out when it's raining, when you're in a wheelchair is rubbish. You can't hold a brolly (both hands busy) and your lap gets soaked. Brilliant.
What is good though, since I've changed to a powered chair, only one thumb is busy so I can hold a brolly! And I'm preserving energy. I'm not sure what for yet.....

Ah yes, the youngest in the family is having a sleepover here tonight. I am her Nanny and the Good Man is her Poppa, and the Little Man is her uncle. You following? Which reminds me...I need to do a family tree. Someone I recently met, looked like I scrambled her brain, so I offered to plot it all down for her. I don't think it's complicated, but I appreciate that other people do. My brother, for example, still can't tell the twins apart. They're not identical either. And we lived with him for a bit. They turned twenty seven this summer.  Twenty seven years and still looking slightly panicked/startled/distressed.

Still, it's amusing watching the panic on his face.